CDH, congenital diaphragmatic hernia, is a birth defect that
I never heard of till about 18 months ago. CDH occurs when the diaphragm does
not form properly and some or all parts of the abdominal organs (stomach,
spleen, intestine and/or liver) move into the chest, affecting the development
of the lungs and heart.
A week ago my cousin Jeremy and his wife Roxanne delivered
their second daughter, Lilly. Lilly has CDH and is fighting a hard battle. Sadly,
her older sister, Briella, born with CDH one year ago, lived just 45 minutes.
Doctors say there is only a 2% chance CDH happens more than once in a family.
And yet, it has. We covet your prayers for Lilly, Roxanne, and Jeremy.
Lilly is responding well to ECMO (Extracorporeal Membrane
Oxygenation), a procedure that uses a machine to take over the work of the
lungs and sometimes the heart. This past weekend she was more alert and wiggly,
stretching her legs out, opening and closing her hand, holding on to her mommy’s
finger. Her vitals, blood work, and EEG are good. She got her hair washed and
had oral care with her mommy's milk!
Lilly’s family is full of hope for this little one. They
believe in the power of prayer and the love of God, as do we. Each day is a
gift for which we thank God. Lilly will be facing major surgeries and uphill
battles in the future. I can’t even imagine the stress and strain on her
parents.
Dick and I know from experience what a difference prayer
makes when going through trials and challenges. Please join us in fervent prayer
for Lilly, Roxanne, and Jeremy, and a chorus of praise for the One who loves
her most.
“You are helping us
by praying for us.” 2 Corinthians 1:11
Be encouraged!
Pam
